THE AMERICAN DIETETIC ASSOCIATION
216 West Jackson Blvd.
Chicago, IL 60606-6995
FAX: (312) 899-4739
Phone: (800) 877-1600
Ncndlib@eatright.org
The American Dietetic Association provides several articles published in the journal of The American Dietetic Association. Cost per article is $15 for nonmembers and includes faxing up to 10 pages. Please include VISA or MC number and expiration date with your request.
To request a Literature Search from the Kidney and Urologic Disease Subfile of the Combined Health Information Database (CHID) for topics in kidney and urologic diseases contact:
NATIONAL KIDNEY AND UROLOGIC DISEASES INFORMATION CLEARINGHOUSE
3 Information Way
Bethesda, Maryland 20892-3580
(301) 654- 4415
Fax: (301) 907-8906
e-mail: nkudic@info.niddk.nih.gov
A current list of patient education materials as well as physician-related research articles on urinary stones is available, including a free brochure "Prevention and Treatment of Kidney Stones."
Established in 1987, the clearinghouse provides information about diseases of the kidneys and urologic system to people with kidney and urologic disorders and to their families, health care professionals, and the public. NKUDIC answers inquiries; develops reviews and distributes publications; and works closely with professional and patient organizations and government agencies to coordinate resources about kidney and urologic diseases. Publications produced by the clearinghouse are carefully reviewed for scientific accuracy, content and readability. NIDDK is a service of the National Institute of Diabetes and Digestive and Kidney Diseases, National Institutes of Health.
THE NATIONAL KIDNEY FOUNDATION, INC.
30 East 33rd Street
New York, NY 10016
(800) 622-9010 or (212) 889-2210
http://www.kidney.org
John Davis, Executive Director
The National Kidney Foundation (NKF) mission is to prevent kidney and urinary tract diseases, improve the health and wellbeing of individuals and families affected by these diseases and increase the availability of organs for transplantation.
AMERICAN FOUNDATION FOR UROLOGIC DISEASE (AFUD)
1128 North Charles Street
Baltimore, MD 21201
(800) 242-2383
e-mail: admin@afud.org
http://www.afud.org
AFUD provides research grants, patient and public education and awareness, government relations and patient support group activities.
AMERICAN KIDNEY FUND (AKF)
6110 Executive Boulevard,
Suite 1010
Rockville, MD 20852
(800) 638-8299 or (301) 881-3052
e-mail: helpline@akfinc.org
Fax: (301) 881-0898
http://www.arbon.com/kidney
Carol Lynn Halol, Interim Executive Director
The American Kidney Fund provides direct financial assistance, comprehensive educational programs, research grants, and community service projects for the benefit of kidney patients as well as patient and public education brochures.
AMERICAN LITHOTRIPSY SOCIETY (ALS)
70 Walnut Street
Wellesley, MA 02181
(781)239-8203
Fax: (781) 239-7553
e-mail: prri@ix.netcom.com
This professional membership society is dedicated to addressing all aspects of lithotripsy as a treatment for both renal stones and biliary disease.
AMERICAN UROLOGICAL ASSOCIATION INC. (AUA)
1120 North Charles Street
Baltimore, MD 21201-5559
(410) 727-1100
Fax: (410) 223-4370
e-mail: aua@auanet.org
http://www.auanet.org
The AUA promotes the highest standards of urological clinical care through education, research and the formulation of health care policy. The primary professional organization for urologists.
CYSTINURIA SUPPORT NETWORK (CSN)
21001 NE 36th St.
Redmond, WA 98053
(206) 868-2996 (eve)
e-mail: cystinuria@aol.com
Jann Ledbetter, Founder
This international network provides support and an opportunity for sharing information for persons with cystinuria, a kidney disorder that causes kidney stones. Also, information, referral and newsletter.
KIDNEY FOUNDATION OF CANADA
National Office
300-5165 Sherbrooke Street West
Montreal, QC H4A 1T6
The Kidney Foundation of Canada informs Canadians about kidney disease and related disorders. This Foundation publishes a wide range of educations materials including brochures, fact sheets and a comprehensive patient manual. Good web source for kidney stone information. http://www.kidney.ca
CROHN'S RL COLITIS FOUNDATION OF AMERICA, INC.
386 Park Avenue South
17th Floor
New York, NY 10016-8804
(212) 685-3440 (800) 932-2423
FAX: (212) 779-4098
e-mail: info@ccfa.org http://www.ccfa.org
The National Network of Libraries of Medicine (NN/LM) provides health science practitioners, investigators, educators, administrators and patients in the United States with timely, convenient access to biomedical and health care information resources. The network is administered by the National Library of Medicine. It consists of 8 Regional Medical Libraries, 131 Resource Libraries (primarily at medical schools) and some 3,300 Primary Access Libraries (primarily at hospitals). Online access to MEDLINE@ and other databases are made available. The National Library of Medicine is part of the U.S. Department of Health and Human Services, Public Health Service of the National Institutes of Health in Bethesda, Maryland 20894. Each regional Library will direct you to a medical library or libraries closest to your home.
The following is a list of the Regional Medical Libraries and the areas served by each.
MIDDLE ATLANTIC REGION
The New York Academy of Medicine
2 East 103rd Street
New York, New York 10029
(212)876-8763
(212) 534-7042 (Fax)
States served: Delaware, New Jersey, New York, Pennsylvania
SOUTHEASTERN/ATLANTIC REGION
University of Maryland at Baltimore
Health Sciences Library
111 South Greene Street
Baltimore, Maryland 21201-1583
(301) 328-0099
(301) 328-0099
States served: Alabama, Florida, Georgia, Maryland, Mississippi, North Carolina, South Carolina, Tennessee, Virginia, West Virginia, the District of Columbia, Puerto Rico, and the U.S. Virgin Islands
GREATER MIDWEST REGION
University of Illinois at Chicago
Library of the Health Sciences
PO. Box 7509
Chicago, Illinois 60680
(312) 996-2464
(312) 996-2226 (fax)
States served: Iowa, Illinois, Indiana, Kentucky, Michigan, Minnesota, North Dakota, Ohio, South Dakota, and Wisconsin
MIDCONTINENTAL REGION
University of Nebraska Medical Center
Leon S. McGoogan Library of Medicine
600 South 42nd Street
Omaha, Nebraska 68198-6706
(402) 559-4326
(402) 559-5498 (Fax)
States served: Colorado, Kansas, Missouri, Nebraska, Utah, and Wyoming
SOUTH CENTRAL REGION
Houston Academy of Medicine-Texas
Medical Center Library
1133 M.D. Anderson Boulevard
Houston, Texas 77030
(713)790-7053
(713) 790-7030 (Fax)
States served: Arkansas, Louisiana, New Mexico, Oklahoma, and Texas
PACIFIC NORTHWEST REGION
University of Washington
Health Sciences Center Library, SB-55
Seattle, Washington 98195
(206) 543-8262
(206) 543-2469 (Fax)
States served: Alaska, Idaho, Montana, Oregon, and Washington
PACIFIC SOUTHWEST REGION
University of California at Los Angeles
Louise Darling Biomedical Library
10833 Le Conte Avenue
Los Angeles, California 90024-1798
(213) 825-1200
(213) 825-5389
States served: Arizona, California, Hawaii, Nevada, and U.S. Territories in the Pacific Basin
NEW ENGLAND REGION
University of Connecticut Health Center
Lyman Maynard Stowe Library
263 Farmington Avenue
Farmington, Connecticut 06034-4003
(203) 679-4500
(203)679-4046
States served: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont
For more information about specific Network programs in your region, call the Regional Medical Library in your area at their direct number or dial 1-800-338-7657. This number is a toll-free line for all Regional Medical Libraries.
For general Network information contact: National Network of Libraries of Medicine National Library of Medicine 8600 Rockville Pike Building 38, Room B1-E03 Bethesda, MD 20894 (301) 496-4777
OXALOSIS AND HYPEROXALURIA FOUNDATION (OHF)
12 Pleasant Street
Maynard, MA 01754
(888) 712-2432, pin # 5392, or
(508) 461- 0614
e-mail: exec-dir@ohf.org
http://viww.ohf.org
Tammy Murphy, Executive Director
OHF assists in informing the public, especially patients, parents, families, physicians and medical professionals about hyperoxaluria and related condition., ie., oxalosis and calciumoxalate kidney stones, provides a support network for those affected by hyperoxaluria, and supports and encourages research to find a cure for hyperoxaluria.
POLYCYSTIC KIDNEY RESEARCH FOUNDATION
4901 Main Street,
Suite 200
Kansas City, MO 64112-2634
(800) PKD-CURE or (816) 931-2600
Fax: (816) 931-8655
e-mail: pkdcure@pkrfoundation.org
Dan Larson, President
Tanja Heinen, Vice President
This Foundation promotes research in the cause and cure of polycystic kidney disease. A patient manual "Polycystic Kidney Disease" quarterly newsletter (PKR Progress) and other materials are available.
SOCIETY OF UROLOGIC NURSES AND ASSOCIATES (SUNA)
East Holly Avenue
Box 56 Pitman, NJ 08071-0056
(609) 256-2335
Fax: (609) 589-7463
e-mail: suna@mail.ajj.com
http://www.inurse.com/-SUNA
Ron Brady, Executive Director
SUNA is a professional organization of urologic nurses committed to excellence in patient care standards and a continuum of quality care, clinical practice, and research through education of its members, patients, family and community.
For Information on Your Medical Records
For a copy of the 69-page booklet Medical Records: Getting Yours, which provides information and advice on obtaining your medical records and includes a state-by- state survey of the laws governing patient access: Send $10 to Public Citizen's Health Research Group, Publications Manager, Dept. MR2, 2000 P St. NW, Ste 700, Washington, DC 20036.
For a copy of your Medical Information Bureau record (if one exists): contact MIB Information Office, PO Box 105, Essex
Station, Boston, MA 02112 (617) 426-3660); Canadian residents contact MIB at 330 University Ave., Ste 102, Toronto, Ontario, Canada M5G 1R7 (416) 597-0590. If you find an error you can ask MIB to correct it.
A free brochure on "Your Health Information Belongs to You" is available through the American Health Information Management Association (AHIMA), Professional Practice Division, 919 N. Michigan Avenue, Suite 1400, Chicago, IL 60611. The phone number is (800) 621-6828
Recommended Books
Oxalate Content o f Selected Foods with Recipes and Menu Suggestions, Second Edition
The General Clinical Research Center, UC San Diego Medical Center, 9500 Gilman Drive, La Jolla, CA 92093-0008
Phone:1-800-520-7323,
FAX: (619) 822-0216
$12, includes shipping and handling. Calif. residents, please add 7.25% sales tax.
Milk is Not for Every Body: Living with Lactose Intolerance
Steve Carper
Penguin Books, 375 Hudson Street, New York, NY 10014
ISBN: 0-452-27711-6
USA $13.95, CAN $17.99
Irritable Bowel Syndrome & Diverticulosis: A Self-Help Plan
Shirley Tricked
HarperCollins Publishers, 77-85 Fulham Palace Road, Hammersmith, London W6 8JB or 1160 Battery Street, San Francisco, California 94111-1213
ISBN: 0-7225-2401-3
USA $11.00, CAN $11.95
Your Body's Many Cries for Water
R Batmanghelidj, M.D.
Global Health Solutions, Inc., P .O. Box 3189, Falls Church, VA
22043, (703) 848-2333, (703) 848-2334 (FAX)
ISBN: 0-962994-3-2-5
$14.95, plus S/H $3.00
You Don't Have to Live with Cystitis
Larrian Gillespie, M.D. Avon Books Healthy Life Publications, 264 South La Cienega Blvd., PMB #1233, Beverly Hills, CA 90211, (801) 760-2384
FAX 1-800-554-3335
e-mail: lgille01@interserv com, web site: menopausediet.com
ISBN: 0-380-78779-2
This book is available from bookstores nationwide. Also, great resource for books on menopause.
What do kidney stones look like? For actual color photos from one of the most informative web sites on the chemical composition of kidney stones, visit the friendly folks at Louis C. Herring Laboratory and Company. This laboratory analyzes the chemical make-up of kidney stones (maybe they analyzed yours?). The web site has interesting facts about stones. Visit http://www.herringlab.com.
To contact Gail Savitz or Stephen W Leslie, M.D.:
Visit our web page at:
http://www.readersndex.com/fourgeez
or
e-mail: ggolomb@ns.net or phone: (800) 2-KIDNEYS